Lucy - TM Custom Portraits

Lucy - TM Custom Portraits

Monday, February 7, 2011

Mon., Feb. 7th

She is nice and toasty warm today. She is continuing to pee like a race horse getting rid of much of the liquid and the puffiness in her body has decreased dramatically. Today the right side chest tube was removed as well as the temp. probe from the cooling and the tube that kept anything from settling in her stomach. This whole time she has been receiving IV nutrition. She was wiggling around a bunch today and making some fun faces in her sleep. More and more movements that are typical of a new born. She worked really, really hard to open her left eye. She looked around for a little bit and then took a nice long nap. Later she opened both eyes at the same time and yawned several of those "huge" tiny baby yawns that are so fun to watch. This evening she had another episode with her heart jumping up to 270 bpm again and was given again the drug that had worked early this morning to bring it down again. Because of this second episode the Dr. is looking at this as the possible cause of her hydrops. From her first tests on Thurs. her heart did show all the parts were there and properly formed but that her heart did show signs of distress. If she had one of the episodes during gestation it is like a cardiac arrest inside the womb and the heart then irritated and stressed can begin to produce this fluid like other injuries would.

She is scheduled for a second ecocardiogram tomorrow as well as an EEG and a more in depth consult with the cardiologist. It sounds like she will need a medication to control this electricity issue with her heart. We have many questions for the cardiologist that will have to wait till tomorrow. When the episode happened this evening it was during the hour that the Dr.'s and nurses make the rounds and do shift change. No one else is aloud in the NICU during that time and Grant and I had run home to do bed time with the children. During this we received a call from the hospital letting us know that this had happened again. I thought I was going to have a heart attack myself when I heard it. Grant is spending the night at home tonight for the first time since last Thurs. After this news he called his buddy Brandon and they came up to the hospital to give her another blessing. While Grant was talking to her she opened her left eye and looked towards Grant. I think she definitely knows her Dad.

12 comments:

  1. You can tell by her latest picture that she is improving. Sweet baby Lucy..... I love her name. Thank you for sharing this with us. I look forward to seeing her progress. Many prayers for Lucy's improvements and for your family.

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  2. Gretchen- You are an amazing woman and my heart and prayers go out to you, your family and especially baby lucy!

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  3. Gretchen and Grant,
    We are praying for you and your family in every prayer. Thank you for sharing pictures of Lucy. What a sweetheart! We look for your Blog updates often. Much love to all.

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  4. I don't know this sweet girl yet but I cant wait to get the chance to. We love her already and we pray for her always. Like I said Gretchen I won't call but if you need me to come up there and watch the kids I will be in a second.

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  5. Gretch my love,

    I know this is not what you need but I can't get through these posts and pictures without getting choked up. I wish I were closer but I know you are strong. I love you and your wonderful family and we are praying for Lucy. Thanks for taking the time to let us know what is going on up there.

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  6. Little Lucy,
    When our son Felix was in ICU 3 years ago, looking quite like you with all your bandages and tubes and linens, one of the doctors said that bad things happen quickly, and good things take time. Felix took his time, 10 days in ICU and 2 more months afterward in rehab, but he is a big strong boy now. So take your time, little Lucy, all the time you need to grow and follow your brothers and sister around, and know that we are waiting for you.
    Felix's mom

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  7. Little Lucy and all of you are in our thoughts and prayers. I hope you don't mind - but I asked facebook friends to pray on your behalf too. Thank you for your faithful example.
    -Jon and Marzee D.

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  8. She is one beautiful baby. I am so glad to see you holding her in your arms all snuggled in. We continue to send your family love and blessings and prayers.

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  9. Gretchen & Grant, we are praying & praying for your family & sweet baby Lucy. She is so beautiful! Rachel & Dave Keller!

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  10. Gretchen, thank you for letting me know about Lucy's blog. If anyone can make it through this, you can! You are in my prayers.

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  11. Tea said...
    I'm so happy for you Aunt Gretchen that Lucy is okay. I can't wait to meet her and tell her how much I love her. I want to tell her that she is an adorable baby.
    I pray for her all the time and my 3rd grade class knows about her and was happy to hear that she will be okay.
    I love you and I love Lucy.
    LOVE, TEA

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  12. I have been following your blog since I first got it. Lucy is sure a strong little girl. Just thru her pictures you can tell how much progress she has made. Your strength and faith is an inspiration. I will continue to keep Lucy and her family in my prayers.
    Linda

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