Tuesday, February 15, 2011
Days of eating, pooping, sleeping and growing
The title basically says what Lucy has been up to the last few days. Up until yesterday she had only been eating herself (bottle and nursing) about 1/4 of her total volume of required milk. They are militant around here with the feeding volumes. Yesterday though Lucy jumped up to consuming 80% of the volume. They want to see if she will do that for a second day in a row and then they will take her feeding tube out and let her set the pace for a couple days and make sure she doesn't have a big weight loss. The Dr. that was with her yesterday and today said that sometimes when someone like Lucy who was so sick is recovering and is so sleepy like she has been will sometimes make a big jump forward in 1 24 hr. period and then get very tired again from all of the exerted energy and be very sleepy again for a couple of days. So we will just wait patiently for her time.
The night nurse who has been on for the past 4 or 5 nights or so has told us that she is very awake and active from midnight to 3 and that is the nurse I have found out is playing dress up with her during that time as well. All the tiny tiny babies in the NICU are not supposed to be handled very much and you can't change their clothes often so they are liking dressing Lucy. I need to remind her that I am not a night shift nurse but a 24 hr. mom and I need to sleep as much as I can at night. No more mid night fashion shows pretty please. When she gets home and wants to do the midnight thing she is going to think we are all very dull and boring.
Lucy passed her hearing test yesterday. That is very good to know especially when they turn 4, 5 and upwards you can know that they are not hard of hearing, just selecting what they want to listen to.
Still no more SVT's since Fri. night. Hopefully that means they have the medicine right for her. One of the medicines is apparently very nasty tasting. The nurse was squirting little bits into the side of her cheek from a syringe when I was feeding her a bottle and Lucy was gagging every time she put more in her mouth. This is the one that has to be given 4 times a day and it is not just a tiny squirt either. We will be finding out about making it berry flavor or something. There are certain medicines they can flavor and I am told the Target Pharmacy has an impressive selection of flavors.
Time to feed miracle girl!