Monday, February 7, 2011
Mon., Feb. 7th
She is nice and toasty warm today. She is continuing to pee like a race horse getting rid of much of the liquid and the puffiness in her body has decreased dramatically. Today the right side chest tube was removed as well as the temp. probe from the cooling and the tube that kept anything from settling in her stomach. This whole time she has been receiving IV nutrition. She was wiggling around a bunch today and making some fun faces in her sleep. More and more movements that are typical of a new born. She worked really, really hard to open her left eye. She looked around for a little bit and then took a nice long nap. Later she opened both eyes at the same time and yawned several of those "huge" tiny baby yawns that are so fun to watch. This evening she had another episode with her heart jumping up to 270 bpm again and was given again the drug that had worked early this morning to bring it down again. Because of this second episode the Dr. is looking at this as the possible cause of her hydrops. From her first tests on Thurs. her heart did show all the parts were there and properly formed but that her heart did show signs of distress. If she had one of the episodes during gestation it is like a cardiac arrest inside the womb and the heart then irritated and stressed can begin to produce this fluid like other injuries would.
She is scheduled for a second ecocardiogram tomorrow as well as an EEG and a more in depth consult with the cardiologist. It sounds like she will need a medication to control this electricity issue with her heart. We have many questions for the cardiologist that will have to wait till tomorrow. When the episode happened this evening it was during the hour that the Dr.'s and nurses make the rounds and do shift change. No one else is aloud in the NICU during that time and Grant and I had run home to do bed time with the children. During this we received a call from the hospital letting us know that this had happened again. I thought I was going to have a heart attack myself when I heard it. Grant is spending the night at home tonight for the first time since last Thurs. After this news he called his buddy Brandon and they came up to the hospital to give her another blessing. While Grant was talking to her she opened her left eye and looked towards Grant. I think she definitely knows her Dad.